I think having leg weakness and pain is common to celiac. It comes in my opinion from an inabilty to produce and absorb b vitamins as well as vitamin d from the compromised villi. I think of this problem of aching legs and feet as being genetically and coeliac induced Beri Beri. I have had all the symptoms–even sometimes seeing and hearing folks who aren’t there as well as having had heart palpitations from a compromised nervous system. Apparently according to a lipid blood test two years ago my myelin sheath covering on the nerves was down to 50%. And no I don’t touch alcohol!
I now take co-enzyme b vitamins from country life (as well as the cod liver oil) in addition to my overall remedies of many years (and eat butter and coconut oil). It appears that as I aged I needed the co-enzyme form of b vitamins since the regular b vitamin supplements were doing me no good. With my yeast sensitivities things like brewers yeast were out (as a good source of b vitamins) and any fermented anything except now non fat organic plain yogurt (which I now can regularly eat since I started taking the country life co-enzyme b vitamins–but could not before!).
Taking vitamin D of course is also important for better calcium and mineral absorption. Taking cod liver oil for the vitamin D is best for me due to my swedish and scottish forbears and better too for the vit. A since I have an inherited inablity to handle eating carrots and most packaged beta carotene A.
Before I learned of this I used marshmallow root, dandelion root with alternating yellow dock or oregon grape root with licorice root (licorice root not recommended if you have high blood pressure), and pao de arco (to keep down fungus) regularly to keep myself alive with uva ursi thrown in occasionally or schizandra due to my tricky kidneys. Years ago I was rapidly losing my kidneys but found a diet avoiding gluten and citrus and using the herbs kept what was left of my kidneys healthy. I discovered my “brew” helps me have less joint pain plus that of my friends who also have arthritic issues. I still use this brew to good effect whenever I am feeling a little frazzled, achey or get kind of mucousy.
However all remedies and diet and brew aside I was very definitely going down hill without the intervention of the co-enzyme b vitamins.
Slowly I have crawled out of the soup with little help from the medical establishment despiote my mtoher and brother with downs having both been determined by Kaiser to have celiac (of course no mention was made to me…even when I was at Kaiser!!). Even the alterantive folks have only been marginally helpful–though I will say the Pap Imi machine was a godsend.
Studying herbs and diet while using observaton and trial and error have helped the most. It has also helped that now there is now more awareness of this condition as with this and other celiac sites — including clues about the B and D vitamins.
Thankfully the celiac has made it so at least I never have to worry about having stiff joints so I look and feel relatively young for my age. Eating all those veggies and exercise and not eating sugar has also helped! Though for me I don’t do at all well as a vegetarian. Too many allergies to too many nuts and grains. Plus I have to limit beans though I can eat them twice a week.